Showing posts with label medicine. Show all posts
Showing posts with label medicine. Show all posts

Tuesday, April 10, 2012

Help Me Take This Mask Off

I visited my grandmother the day I turned eighteen. It was the first time I had been back to Taiwan after five years in the States. The trip was a gift from my parents for getting a full scholarship to university, or so they said. I had wanted to go much earlier, but there was no point arguing with them.

It was a sweltering summer afternoon in Taipei, and my cousin Erica took me on the MRT to a corner of the city I rarely visited in my childhood. The hospice center was clean and dim, its main room occupied by elderly patients in wheelchairs watching some television drama. A middle-aged caretaker guided us through a maze of partitions to where my grandmother lay strapped to a bed.

"Just for once, let me look on you with my own eyes."
He explained that she could no longer move, see, or speak, and her hearing had deteriorated. We had come at a good time, however, as she was often awake in the afternoon. He put a hand on her shoulder and shook her gently, saying her grandchildren had come to see her, then left us.

Erica had to nudge me forward. Finally, I took my grandmother's rigid, claw-like hand, leaned close to her ear, and said I was back. I told her I had graduated high school, and would be going to college soon. I told her she raised me well, and did not need to worry about me. I told her I was sorry I did not get to see her earlier.

Her eyes did not focus on me, but as I spoke she started to cry. Erica told me that it happened sometimes, that it meant she knew I was there. She had no other means of communicating.

We stayed with her for a while, and she wept until she drifted off to sleep. I followed Erica back out into the sun-baked street. I felt like I was underwater, as if everything came to me from a great distance. Even the heat and humidity of a Taipei summer could not banish the sense of disconnect. It was the first time I felt the vast numbness that passes for my grief, but it would not be the last.

Because the progression of Parkingson's Disease had been frightfully quick for my grandmother, I do not think that either she or her doctors thought she would hang on for so long, forlorn and cut off from the world. I will never know if she wished for death in her final years of darkness. If we could have known then what she wanted, we would have done it; but she could only cry.

Wednesday, March 7, 2012

The Consequence of Humanity


I recommend reading Inherit the Earth first, but those familiar with the concept of transhumanism can probably afford to skip it. In case you are wondering: no, I did not do all of my research on Wikipedia, but it does makes a convenient quick reference for readers unfamiliar with the terms.

Jaye Davidson in The Crying Game
At last year's Dragon*Con Transhumanism Open Discussion, someone brought up the idea that transsexual rights are similar in some ways to transhuman rights. While most people are not familiar with transhumanism, they do generally have a passing familiarity with transsexualism. Public opinion and legislation surrounding gender variance may well inform us about the way society will react to emerging transhuman issues.

Transgender (gender variant) people in general face a great deal of prejudice and, in some parts of the world, denial of basic rights. Transsexual people in particular, whose bodies do not match their gender identity, often seek medical procedures to transition to their target gender. This is accomplished through sex reassignment therapy, which may include hormone therapy, genital reconstruction, hair removal, and various cosmetic surgeries.

Many social conservatives regard gender variance of any sort as a deviation to be suppressed. Even social liberals often find transsexual people intimidating, and profess discomfort at associating with them. The fear and misunderstanding of these issues has lead to the development of a 'gatekeeper' mentality in legislation and standards of care relating to sex reassignment therapy. Transsexual individuals must undergo lengthy psychological assessment, and may be barred from medically transitioning if they do not meet the criteria.

Such barriers exist ostensibly to keep people from undergoing procedures they do not require. However, the gatekeeper mentality is, like censorship, founded on society's lack of confidence in itself. Transsexual people with no access to legitimate sex reassignment therapy often seek illegal alternatives, so the 'gatekeeper' system is not really effective at 'protecting people from themselves' in any case.

It is hard to imagine anyone going through the pain, expense, and social fallout of sex reassignment without good reason. However, if a man decided that he wanted breasts, or did not want a penis, he should have as much of a right to seek treatment as a trans woman (a male-to-female transsexual). In the same way, a man should have the right to seek a prosthetic replacement for his hand whether or not the original one functioned (I did not say this is a good idea, or that the technology is 'there' yet--only that it should be allowed). Mandating therapy (for all of the above) is still a good idea, especially in the case of minors, but ultimately the choice should belong to the individual.

I do not mean that the transhumanist desire for modification is equivalent to the agony of gender dysphoria and social rejection that drives so many gender variant people to suicide. At minimum, though, the rest of society will likely see transhumans the same way they see transsexuals--incomprehensible and frightening. Legal and medical gatekeeping of human augmentation will likely come to pass as such procedures become more common. I hope that society will grow more enlightened on the topic. Until then, transhumanists should advocate for the rights of transsexual people. Not only is it the right thing to do, it sets important precedents for other changes to come.

Wednesday, February 29, 2012

Inherit the Earth

I consider myself a transhumanist--that is to say, I have an interest in ideas about modifying and improving the human body and mind through technology. No, I do not think the Strong AI In the Sky will solve all our problems overnight, though I cannot discount the possibility, either. It seems likely that changes will occur within my natural lifespan which would have been unthinkable at the time of my birth--or even now.

I recognize that misusing technology can spell dire consequences for humanity and the Earth. However, fear and luddism make poor strategies for averting such consequences. No amount of regulation or doomsaying is going to forestall technological progress now. The key to ethical and beneficial advancement lies in understanding technology and making it accessible to more people.

Not just for lightsaber-related injuries!
Transhumanism is an enormous complex of ideas. Here, I would like to focus on the acceptability of human augmentation or modification.

I believe in the right to modify the human body on a voluntary basis. That goes for tattoos, piercings, plastic surgery, cybernetic prostheses, gene therapy, et al. I do think that regulatory/medical oversight should exist for some procedures. However, if I want to amputate my right hand and replace it with a prosthesis at my own expense, I should be permitted to do so. (Edit: I understand the current limitations of prosthetic technology; I am speaking hypothetically in order to underline a philosophical issue.)

Say I lost my hand in a tragic lighsaber...'accident'. Most people would find it understandable if I seek a replacement, and see nothing unethical about it. What if the injury only rendered my fingers useless? Or just less dexterous? What if the hand worked fine but never stopped hurting? I do not see a rational justification for drawing an arbitrary line and saying, "You must be this impaired to seek treatment."

It startles me how many people disagree, even with regard to existing procedures. Though tattoos and piercings have finally gained some degree of mainstream acceptance, many people seem to have reflexively negative opinions of other modifications. I have striven to understand these concerns, and have found the following three most common:

  1. Lack of desire for modification and inability/unwillingness to imagine why no one else would desire it.
  2. Belief that vanity (or some other moral failing) is the primary motivation for modification.
  3. Attachment to ideas of purity (e.g. "The body is a temple") or naturalness (e.g. regarding breast prostheses and implants as 'fake'), and seeing modification as detrimental to same.

I suspect these concerns will fade as the idea of modification becomes less novel. A much more serious potential barrier is the 'gatekeeper' mentality assumed by governments and the medical community toward certain elective procedures. The assumption is that medical information and advice are not sufficient to prevent individuals from making bad decisions. This is probably true in some cases, but I do not think it is right (or effective) to legislate common sense.

We live in exciting and perilous times, and it behooves us to think well on these matters. To be human is to strive and innovate, to overreach and learn from mistakes. Humanity will advance, that is a near certainty; how we do it, though, is still in the air. It is my hope and my goal that we find a way to move forward with wisdom and intent.